7 More days of hell – It is getting better – The next steps


So it’s Sunday today. It’s been 7 days since my last blog and pretty much 7 days of hell. I don’t recall moving from the couch for about 72 hours, lest it be for a screaming match with the toilet.
I don’t want this blog to be all doom and gloom. I will say though, I think I can see light at the end of the tunnel.
Each day is better than the last. Each day is like 100% improvement from the previous day. I still haven’t got my appetite back completely, I’ve gone from not eating completely, to ‘I had a slice of toast today’, to a Sandwich the following day and then on to a full meal. (Or what I could finish of it)
I would say that I am not yet back at multiple meals a day yet. I can imagine that it won’t be too far away.

Mentally, I think that the pain from all of the radiotherapy has scarred me a bit. I am looking forward to burying it deep DEEP away in the years to come.
Kerry and me had a discussion day before yesterday about it. I think if the tumour had been elsewhere, I don’t think I would have suffered as much and because of said location, I just don’t think I could go through another treatment cycle of radiotherapy if Dr Pedley requested it for me.
I think I could handle IV Chemotherapy though I’d hate it but I just don’t think I could do another session of radiotherapy let alone a cycle. The pain is just too much. I don’t have it in me to go through it.

So it is getting better. I haven’t needed Oramorph for 2 days now. Get through today and it’s 3. I am still taking my 2 X Tramadol and Paracetamol 4 times a day, but as I say, I am not needing to reach for the bottle which is great, just what it does to me… I hate it. I’ll look forwards to the detoxing from all of these pain killers in the future.

As I say, each day goes by and I feel 100% better than the previous and I look forward to feeling more and more like normal.

I’m looking forwards to being able to get up and walk around. I miss the sun on my face, the dog walks and well… not the four walls of my house.

I am being asked quite a bit what I am doing about Covid-19/The Corona Virus.

Well, I am pretty much in self-isolation anyway. (Clearly unintentionally) but since I am immunocompromised due to the chemotherapy it made sense.
I have long since requested that my friends and family have so much as slight snivel or feel a cold coming on that they steer clear. I would say it’s the most simple step I could take. I noticed that it upped the Texts/Emails/Whatsapp messages. Proving that friends don’t want to make me sick and that they’re listening.
Kerry works from home. We do our food shopping on Ocado.com and if we do need to go to the shops quickly, it’s Tesco Express near our home and straight in and straight out.
We’re not going to any gatherings, sporting events, cinema etc.
Plus, we’re computer geeks and love each other’s company. We’re doing all of the hygiene recommendations from WHO.

What we aren’t doing, is listening to that Golden Gammon/Trump 2.0 Boris Johnson. If we did as he suggests…

I’d be dead as we all know it.

So thanks for everyone that asked or worried about me. I think that we are doing the best we can. If you think I should be doing more, then please let me know. Now to completely go back on what I just said…

If you follow me on Instagram or Facebook you may know that Kerry managed to get me out of the house on Friday for a trip to the coast. Kerry took the day off work. (I have been telling her to use some of her annual leave, it’s not like we’re going on holiday any time soon) so she treated me to fish and chips and a cup of tea. There was discussion of an ice cream afterwards, but I couldn’t finish the fish and chips.

Coleman’s Seafood Temple South Shields. IMHO the best Fish and Chips in NE England

We walked into an empty restaurant. Though it did fill slightly as we were leaving. It was a really nice trip out. I remember passing out when I got home. *(I can hear my mum saying “It’s that Sea Air…” in my head right now)

So I am upbeat now, an OCEAN away from where I was last week and I hope that I didn’t scare too many of you with the previous blog but I promised to be truthful with this blog.

So… on to the next steps. I have a CT Scan on Tuesday of next week. (17th) and then an update appointment with Dr Pedley on 25th and checking my calendar, I have an MRI scan on 6th April barely a week-10 days later.

So it looks like it’s all go. I have to admit, I already have ‘Sc-anxiety’ about the up and coming scans. I really could do with some good news so fingers, toes and eyes crossed for me please.

I am going to cut this one short for now, thanks for continuing to read and support my blog. We’ll get there, somehow…

Mood: I’m upbeat this week. Starting to see light at the end of the tunnel
Pain: Still hell on earth passing anything, but 5-6/10 at all times, 9/10 passing
Appetite: Not back to normal, I am eating a solid meal a day
Weight: 95KG

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